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Description
My granddaughter, Kelsey, suffers from a genetic deficiency known as Adenosine Deaminase 2 (DADA2), with a manifestation known as polyarteritis nodosa (PAN). She was diagnosed at 3-years-old and started on injectable medication at that point. She has been receiving injections on a frequent basis ever since. She has anxiety when it is time for her injection, even after all of these years. I wrote this book to help her understand, cope with, and accept her circumstance.
All of the proceeds from the sale of this book will go directly to Kelsey's Kaleidocope, Inc.: A New View for PAN, which is a non-profit organization I founded in order to raise awareness and fund research to find a cure for DADA2 and PAN.
Thank you for your support, and please visit our website, www.newviewforpan.org for additional information.
Spécifications
Parties prenantes
- Auteur(s) :
- Editeur:
Contenu
- Nombre de pages :
- 30
- Langue:
- Anglais
Caractéristiques
- EAN:
- 9781640967762
- Date de parution :
- 05-03-19
- Format:
- Livre broché
- Format numérique:
- Trade paperback (VS)
- Dimensions :
- 203 mm x 254 mm
- Poids :
- 104 g
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